We make sure our relationship with the treatment industry and other commercial partners is ethical and transparent.
As part of its fundraising AGSD-UK receives grants from the health and pharmaceutical industry to support its vital work on behalf of people affected by GSDs. The relationship is based on independence, accountability and transparency. Care is taken ensure that companies neither seek nor receive any influence over the charity and that there is full compliance with strict Association of British Pharmaceutical Industry (ABPI) and Charity Commission guidelines.
Within this tight ethical framework we seek to work in partnership with the industry for the benefit of the community, enabling the experiences of people affected to help inform research and drive the development of new treatments and resources.
All GSDs pulling together makes us all stronger.