“I learned to accept what is and embrace what can be… in just 210 miles!”
With each step your heart beats faster, your legs grow heavier and realisation sets in – you have to stop! For those of you with McArdle Disease, and for those that have walked alongside it, this ritual is all too familiar.
“One Step at a Time” traces the route, thoughts and emotions of a McArdle patient on a life-altering journey of discovery and growth. Her understanding irrevocably evolves when she walks over two hundred miles to meet it.
Today, walking with others has become a regular event. McArdle groups are getting together around the world to walk, share and learn from one another in a supportive and safe environment.
From the Welsh countryside to practical advice for day-to-day living, “One Step at a Time” provides a truly awakening narrative for patients, families and health professionals alike.
Foreword by Dr. Ros Quinlivan
Afterword by Dr. Mark Tarnopolsky