Description
“I learned to accept what is and embrace what can be… in just 210 miles!”
With each step your heart beats faster, your legs grow heavier and realisation sets in – you have to stop! For those of you with McArdle Disease, and for those that have walked alongside it, this ritual is all too familiar.
“One Step at a Time” traces the route, thoughts and emotions of a McArdle patient on a life-altering journey of discovery and growth. Her understanding irrevocably evolves when she walks over two hundred miles to meet it.
Today, walking with others has become a regular event. McArdle groups are getting together around the world to walk, share and learn from one another in a supportive and safe environment.
From the Welsh countryside to practical advice for day-to-day living, “One Step at a Time” provides a truly awakening narrative for patients, families and health professionals alike.
Foreword by Dr. Ros Quinlivan
Afterword by Dr. Mark Tarnopolsky
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