This booklet is based on the experiences of people with McArdle’s and the issues that can arise in primary care, hospital visits and seeing other consultants. It is not a replacement for McArdle care from an experienced McArdle specialist.
It offers referenced information to assist medical staff who are attending people with McArdle’s. It is a quick guide to McArdle’s, and is focussed on primary care issues with pages on Creatine Kinase levels and emergency visits to hospital with rhabdomyolysis. It addresses all the common misconceptions, confusions and mistakes. The intention is that the GP should hold a copy as should the McArdle person to use whenever they are in a medical consultation.
The content will be very helpful to people with McArdle’s in many countries. Two copies are included – one for your General Practitioner and one for you to keep for you own reference and to take to appointments with other medical professionals.
A PDF copy of this booklet may be downloaded free of charge.