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101 Tips for an Easier Life with Pompe Disease


Practical tips and straightforward information to help newly diagnosed people and those struggling to manage their condition, or just looking for a few extra tips. Also useful to help explain Pompe to friends and family.

156 pages, 115x148mm, paperback, full colour.
Published 2015.

Written by the Pompe Support Team
With a foreword by Dr Mark Roberts


Description text

More Details

This handy, pocket-sized book has sections of tips on:
  • Diet and nutrition
  • Pain and fatigue
  • Home and garden
  • Chores
  • Medical and ERT
  • Personal
  • Travel
  • Emergencies
  • Physical activity
  • Leisure and hobbies
  • Keeping positive and speaking up
  • School, college, work
  • Family and friends
Information sections on:
  • About Pompe disease
  • Pompe glossary
  • Useful links
  • About the authors

Additional information

Weight 195 g
Dimensions 14.8 × 10.5 × 1 cm
Book Type

Printed Paperback