Living with McArdle Disease is challenging in many ways. Running out of energy, cramping and muscle pain are everyday experiences. Even simple tasks like chewing or drying after a shower can be a challenge. We pass on practical tips which McArdle people have found to be useful, with contributions from McArdle people around the world.
The “More than” flash on the cover gives the clue – there are actually 125 numbered tips and many are multiple tips in one, so there are around 200 useful ideas in all. We also provide explanations of four key subjects – second wind, the six second rule, your immediate energy ‘reservoir’ and guidance on emergencies.
This book will help McArdle people to reduce intense ‘anaerobic’ activity and extend more gentle ‘aerobic’ activity. These changes can improve day-to-day life. We also provide references to sources of further information. The aim is to avoid pain and muscle cramps, reduce or eliminate hospital visits and get more out of life.