Julie Garfield has been making bag tags for Pompe children to go back to school.
A survey looking at the Covid-19 impact on wellbeing in families of children with rare neurodevelopmental and genetic disorders study
AGSD-UK are offering a free online mindfulness course to those working with or affected by GSD.
This webinar will explore educating physicians in rare diseases. It is open to all.
Metabolic Disorders Awareness Week runs from 06.07.20 – 12.07.20. see how you can be part of it.