Back to school bag tags.
Julie Garfield has been making bag tags for Pompe children to go back to school.
COVID-19 impact survey for families.
A survey looking at the Covid-19 impact on wellbeing in families of children with rare neurodevelopmental and genetic disorders study
Free Online Mindfulness Course.
AGSD-UK are offering a free online mindfulness course to those working with or affected by GSD.
Open Health Webinar – Educating Physicians.
This webinar will explore educating physicians in rare diseases. It is open to all.
Metabolic Disorders Awareness Week.
Metabolic Disorders Awareness Week runs from 06.07.20 – 12.07.20. see how you can be part of it.