Extension of Early Access to Medicines Scheme for trial Pompe drug.
An update on avalglucosidase alfa.
Success for our Benefits Advisor.
AGSD-UK’s Zainib Hussain has been providing much needed support.
GSD in the National News.
7 year old twins in Scotland have received their first Covid vaccinations.
CureGSD1b Research Ready Data Collection Plan.
The CureGSD1b Research Alliance is working extensively on a full understanding of the research landscape related to GSD1b at the moment.
Nigel Walker runs London Marathon to support AGSD-UK.
Well done to Nigel Walker who has completed the 2021 London Marathon.