15th April 2014

International Pompe Day

Press Release

 

Pompe Update

Healthcare at Home

Deliveries Statement

 

GSD Giant 2014 

Annual cyclo-sportive.

7th September 2014

Goodwood, West Sussex

104, 76, 44 mile options

 

GSD Giant website
  

 

Type IX workshop reports

These are reports of the workshops covering Type IX held at the Annual Conference. The reports are the responsibility of and copyright of their respective authors. Where a workshop report is shown as available, click on the download link on the right to view it. These are PDF files and will download to disk or open in a new window depending how your browser is configured.

 

Year
Medical professionals
Report
2002
Clinical features of Types III and IX, Dr Helen Mundy
2001
Bone mass in GSD I, III and IX patients, Dr Cabrera
2001
Afternoon discussion with Dr Philip Lee
2000
GSD IX (Phosphorylase Kinase Deficiency), Dr Philip Lee