15th April 2014

International Pompe Day

Press Release

 

Pompe Update

Healthcare at Home

Deliveries Statement

 

GSD Giant 2014 

Annual cyclo-sportive.

7th September 2014

Goodwood, West Sussex

104, 76, 44 mile options

 

GSD Giant website
  

 

Past fund raising

GSD Giant bike ride

2nd September 2012
Our first cycling ‘sportif’ - a giant ride around the gentle undulations of the South Downs National Park, based from Goodwood, West Sussex. 250 riders took part. Read more here.

 

 

 

 

 

 

 

 

 

 

 

 

 


 

Blade Abseil 2012

30th June 2012
Our first abseil at the Blade in Reading was a great success with 6 brave souls descending from the 13th floor of this landmark building, a height of more than 260 feet. They raised a fantastic £2,000 for our charity. For details of forthcoming abseil events please get in touch now.

 

 

 

 

 

 

 

 

 


 

Why Run When You Can Walk? 2012

5th & 6th May 2012
A small but select bunch took part in the ‘Walk the London Marathon’ over the weekend of 5th & 6th May 2012. They completed the very same route (26.2 miles) covered by thousands of runners each year and raised £1,500 to help the work of AGSD-UK, despite the winter-like weather. Next year’s event will take place on 13th & 14th April 2013 so register your interest now.

 

 

 

 

 

 


 

The Italian Job

September 2011
Read all about this major fund raising event of 2011 - The Italian Job bike ride from Hastings to Pompeii - here.

 

 

 

 


Guy’s Hospital tower abseil

8th May 2011

More than £6,000 was raised for AGSD-UK when 16 people took part in the 500 foot abseil from Guy’s Tower in London. The very first abseil held to raise funds for our charity was a great success with everyone completing the challenge and getting a fantastic view of the city as they came down the side of the building.

 

 

 

 

 

 

 


 

Why run when you can walk?

9th & 10th April 2011

A group of 17 intrepid walkers took part in our walk of the London Marathon route over the weekend before the actual running event in April. Participants came from all over the country with some even coming from Canada to complete the 26.2 mile challenge following the exact London Marathon route! The group raised an amazing £14,000 for AGSD-UK and had a celebration at Henry’s Bar near the Mall at the finish, where they were refreshed and were presented with their special certificate and awards. Three walkers with McArdle Disease Tweeted their experience of the weekend, with photos and maps. Read their Tweets here.

 

 


 

Walk over Wales for McArdle Disease

2nd July to 2nd August 2010

This adventure was rightly abbreviated to 'WoW'!
A sponsored walk over Wales. Over from North to South and over the main mountain peaks - including Snowdon, Cadair Idris and Pen-y-fan, the highest in north, mid and south Wales. 210 miles in distance and 35,000 feet of ascent. The objective of the walk was to raise awareness of this rare muscle disease - McArdle Disease - so that more children can be diagnosed at an early age and rescued from a painful, damaging and miserable time at school. The walkers not only made it all the way to Cardiff but got lots of press coverage and got onto the ITV 6pm news, AND raised over £14,000 between them. The team blogged an uploaded photos on a daily basis. Read their story here.




 


 

Flora London Marathon

26th April 2009
Mark Upham finished the marathon in 4 hours 20 minutes, raising over £1,700 for AGSD (UK). Said Mark "It's personal to me because Niamh, who is my eldest daughter's best friend, has GSD. Because of the positive outlook that her mum and dad, Tony and Sarah, have you would never know that Niamh has this condition. However, there are a lot of children that have more severe versions of GSD and are unable to lead as full and active life as Niamh. There is limited money spent on research, hence why I wanted to support the association and raise whatever I could. Thanks to all for your support, it really helped when I was struggling."





 


 

Sponsored West Highland Way

6th to 13th April 2007
Jane Cargill (Type V, McArdle disease) and friends walked the 95 miles of the West Highland Way from north of Glasgow to Fort William in 8 days, ending in the shadow of Ben Nevis. They put on weight, got bitten by ticks and had one lunch in a culvert sheltering from the rain - but had a great time with champagne at the end and raised £900 for McArdle disease research. Well done all, but especially Jane! They say their next challenge is Ben Nevis in September.







 


 

Flora London Marathon

22nd April 2007
Luca Venditto, Gary Baker and James Clarke ran the Flora London Marathon to raise money for AGSD (UK). All completed the 26 miles in gruelling heat. 'The hardest thing I have ever done' said James Clarke. Read all about our three runners.
Photos and story here.




 


 

Bike Ride in Costa Rica

3rd to 12th March 2006
Few places on Earth have a greater diversity of natural habitat within as small an area as Costa Rica. It boasts three dozen national parks - comprising cloud, rain and dry forest - 850 species of birds and 1400 types of trees. It is home to a diverse wildlife population including crocodiles, monkeys, and armadillos. What better way to explore the incredibly diverse eco-systems of this beautiful country than by bike? There are no bike lanes and potholes abound but away from the main highways roads are a little travelled and one feels very close to nature.

More photos and Allan Muir's secret diary here.

 


 

Bike Ride in Vietnam

7th to 16th November 2003
The big idea for an adventurous sponsored bike ride to raise money for research was down to Tim Arthur. After many, many months of planning and committed training, 18 riders set out on an 8 day ride of 300 miles in Vietnam. A fearsome 5,000 foot high pass was tackled on day 4, a typhoon brought torrential rain for 2 days, starts were at 6am to avoid the heat. The group bonded into a team and had a wonderful time, experiencing great hospitality from the Vietnamese and enjoying the 'culture-shock'. Vietnam exceeded expectations in both scenery and the people. The riders raised an astonishing £70,000 plus between them.
Photo: Allan Muir.

For more info and photos visit www.complexplanes.co.uk/Vietnam