View or download our
Healthcare at Home
7th September 2014
Goodwood, West Sussex
104, 76, 44 mile options
GSD Giant website
For Type II Pompe links see the Pompe Pages.
For Type I Von Gierke and Type V McArdle links see their respective sections of this site.
Please click here to report broken links.
CLIMB Children Living with Metabolic Diseases - the National Information Centre for Metabolic Diseases
OMIM On-line Mendelian Inheritance in Man is a searchable database on all of the known genetic diseases. A lot of information but very technical.
The Muscular Dystrophy Association in Australia has information about several types of GSD.
Diseases of the Liver has information about the liver-related forms of GSD.
Children's Liver Disease Foundation - a useful website for liver diseases
Genetics Education Center at Kansas University A good collection of educational resources for genetics.
Contact a Family - for families with disabled children
The Muscular Dystrophy Campaign in the UK works with the muscle-involved types of GSD.
Medic Alert Foundation - identification system for individuals with hidden medical conditions.
France - Association Francophone des Glycogénoses
Germany - Selbsthilfegruppe Glykogenose Deutschland e.V.
Italy - Associazione Italiana Glicogenosi
Scandinavia - Scandinavian Association for Glycogen Storage Disease - (SAGSD)
Spain - Asociacion Española de Enfermos de Glucogenosis (A.E.E.G.)
USA - Association for Glycogen Storage Disease
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271