15th April 2014

International Pompe Day

Press Release

 

Pompe Update

Healthcare at Home

Deliveries Statement

 

GSD Giant 2014 

Annual cyclo-sportive.

7th September 2014

Goodwood, West Sussex

104, 76, 44 mile options

 

GSD Giant website
  

 

About communications

One of the objectives of the AGSD-UK is to act as a vehicle for communication of GSD related matters by publishing and distributing relevant material. We do this primarily through this website, our newsletter and the Pompe Bulletin. We also produce a leaflet on the AGSD-UK and its work.

We tell you about the international support group GSD Net - a list server which enables people with GSDs from all around the world to communicate easily by email. And finally, we offer a page of links to other GSD related web sites.

We like to communicate via email to keep costs down, so please remember to keep us up to date with any changes to your email address. You can now do this by clicking on the 'Login' link at the bottom of the page and entering your user name and password. Then click on your name to amend your email address and other details. Alternatively use the contact us form.

Please select from one of the items below.


For publications on Type II please see the Pompe Pages.