The AGSD-UK is managed by a volunteer Board of Trustees elected by its members at the Annual General Meeting held each year as part of the Annual Conference. The current members of the board are listed below. Trustees are unpaid volunteers and are debarred by charity law from any financial gain from their involvement with the charity. If you would like to volunteer to help the charity in any capacity or would like to consider becoming a Trustee, please get in touch with the Chairman via the Contact us page.
For background information about our Trustees and officers please see our profiles page.
Sue Del Mar - Trustee
Mary Middleton - Trustee
Michael Porter - Trustee
Ann Phillips - Trustee
Patrick Phillips - Deputy Chairman
Jayesh Pindolia - Trustee
Andrew Wakelin - Chairman
The following paid staff are based at the AGSD-UK office (hours Monday to Thursday 9am-5pm). Address & telephone.
Allan Muir - Development Director
Wendy Griffiths - Administrator
Other AGSD-UK paid staff
Joan Fletcher, FCO/CNS - Family Support Officer
(Joan is employed by the NHS under a grant from Genzyme Therapeutics Ltd to support Pompe families.)
Please see the list of volunteer co-ordinators here.
The following are other volunteer appointments of the AGSD-UK.
Kate Phillips - Newsletter Editor
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271