15th April 2014

International Pompe Day

Press Release

 

Pompe Update

Healthcare at Home

Deliveries Statement

 

GSD Giant 2014 

Annual cyclo-sportive.

7th September 2014

Goodwood, West Sussex

104, 76, 44 mile options

 

GSD Giant website
  

 

Governance of AGSD-UK

The Association for Glycogen Storage Disease (UK) Limited is a membership based association. It is a company limited by guarantee which is registered as company number 6981121.

AGSD-UK is a charity registered under number 1132271 with the Charity Commission for England and Wales, although we cover the whole of the United Kingdom. Our details can be viewed on the Charity Commission website. (Prior to incorporation our registration number was 327841.)

The AGSD-UK is governed by a Memorandum and Articles of Association. This document sets out the objects of the charity, how the Trustees are appointed, how meetings are conducted and how the finances are managed.

The members of the charity elect the Trustees who manage the association on behalf of the members.